His elated mom, Tracey, 33, mentioned final night time: “Thanks to the Specific and your unbelievable readers for all you will have carried out. “He’s nonetheless very sick and has declined so much over the previous week, so his journey forward goes to be troublesome and harmful. “However that is actually optimistic and whereas he continues to struggle, we are going to struggle with him. “He’s a warrior. He’s our son. His life issues. This struggle is just not over,” she added.
Vertex’s U-turn adopted our two heart-rending appeals final week, together with a bedside plea by Ayden to save lots of his life.
Solely seven months in the past, a vigorous Ayden had friends in hysterics when he gave a speech at his mother and father’ wedding ceremony. However a sequence of winter infections left the football-mad teen in intensive care on the Royal Hospital for Kids, Glasgow, combating to breathe.
It was thought he would die in days until he acquired Trikafta and within the final 48 hours, Ayden and his docs have fought to maintain him off a life help machine.
If Ayden had been placed on life help, it was unlikely that Vertex would challenge Trikafta.
On Friday, Ayden’s situation was so grave, docs feared he wouldn’t survive that night time.
Tracey mentioned: “At 11pm, we had been requested to contemplate withdrawing Ayden’s help because it didn’t seem like he was going to make it by the night time.
“I feel for a very long time we have now tried to be ready for this, however you’ll be able to by no means be ready.
“After a troublesome few hours, we had a cellphone name from Ayden’s guide to say Vertex…